Posted January 11, 2012on:
Many of us grew up hearing the nursery rhyme that began with “Monday’s child is fair of face.” Something that has always bothered me, even before I had a child born on Wednesday, is the “Wednesday’s child is full of woe” line. I actually recently read a bit of history about the rhyme that mentioned that originally it was Friday’s child that was woeful and Wednesday’s child that was loving and giving. Guess that goes to show that it doesn’t matter what day of the week you’re born on and that it’s all superstitious nonsense. Yet, somehow it’s that nonsense that seems to stick in my mind any time I hear bad news about Elijah.
A bit of background for those of you who still aren’t aware of this story, back in October Elijah was diagnosed with a genetic disorder called Fragile X Syndrome. Before the geneticist mentioned testing for it, I had never heard of it. I won’t go into all the details on my reaction right now, I actually have a solid four months worth of blog posts surrounding that issue saved in OneNote, I just wasn’t ready to begin talking about it before now, so I’m sure they will eventually make their way on to here in some shape or form. But for now it’s enough to know that Fragile X isn’t a physically debilitating disorder, it doesn’t typically cause any major health problems (with a few exceptions, but those aren’t that prevalent) and it is definitely not the worst thing out there. That being said, it does cause some major intellectual disabilities, particularly in males, and has a high association with autism.
Elijah is definitely showing the developmental delays one would expect for someone with his diagnosis, although so far they have ruled out the autism spectrum disorders, for which we continue to be grateful. Actually, in this way he’s much more of the “loving and giving” type than “full of woe.” He’s actually one of the happiest kids I’ve ever had the pleasure to meet and he’s so loving that he needs at least 30 minutes of hugging, kissing and cuddling when I get home from work or pick him up from school. It’s adorable how attached he is to both of his parents and immensely reassuring. Every time I walk in the door and see the huge smile he has for me with his arms open for a hug my heart sings and I know that despite all the other worries, this, at least, is right.