Posted January 13, 2012on:
“Life isn’t a matter of milestones, but of moments” -Rose Kennedy
Every parent celebrates those major milestones when their child takes their first steps, babbles their first words, eats their first mushy bite of oatmeal. I’ve not yet found a satisfactory description of the feeling of pride and joy that fills your heart when you see that miniature person grasp an activity or concept that is something you probably take for granted every other minute of the day. As a parent of a child with fragile x I find that not only do I celebrate the big deal milestones, but that frequently things I’ve never even considered milestones or even really thought of at all take on tremendous importance. Things like communicating a desire or request, the basic building block of communication, become just as big of a deal as walking when they’re things that your child has to work so hard to grasp.
It’s shortly after Elijah’s second birthday and communication is a hurdle we are still figuring our way around. He’s just recently begun to request things like being picked up (by standing in front of us with his arms raised in that classic childhood pose which is so amazingly cute that you can’t help but feel your heart melt) and he’s also started bringing me his favorite story so I can read it to him. It’s so amazing to have him doing these that even by the seventh time through Brown Bear Brown Bear I’m still happy to be reading it to him and read it with the exact same amount of enthusiasm as the first time through.
He’s also started babbling with a few more sounds these past few weeks. I’m trying not to read too much into it as he’s done this in the past and then regressed for months at a time, but there’s always the hope that maybe this time he’ll continue to make gains in communication. I suppose the overall theme of our days is that there is always hope, but in the meantime, rather than focusing on the milestone, we’re enjoying the moments 🙂